oedema information

Hi Everyone Many of you are following Susan's journey at the Foeldi clinic. She's finally finished. This quick update tell us how she faired, and what she has to do now when she goes back to Ireland Not all health systems are created equally, and sometimes even though we have an imperfect system, at least we have something. However, it is only by being united in our struggles across the world that we can continue to keep raising the profile of this very common condition www.lymphireland.com/6431-2/ 

In this online presentation Margarita Correa MD takes us through the background of Lipoedema, the co-morbidities, the lab background etc https://www.slideshare.net/physmedi/lipedema-fatty-tissue-deposition-syndrome?trk=v-feed For me this is great knowledge to try to understand exactly what lipoedema sufferers have going on. Virtually everything you need to know is in this presentation! Happy reading.(learning in my case)

Today I wanted to highlight one of the bigger not for profit oedema groups outside of the UK where we have the excellent LSN (Lymphoedema Support Network) Hence...Ninja's Fighting Lymphoedema https://greatnonprofits.org/reviews/ninjas-fighting-lymphedema-foundation/340252 Mission : Ninjas Fighting Lymphedema Foundation is a non-profit organization with a strong patient to patient understanding. Our focus is to prevent disease, improve community health and promote LE awareness worldwide. Target demographics : assist eligible patients with out of pocket expenses. Treatments consist of products, devices, therapy, and in some cases surgery. Most insured patients have to pay out of pocket portions if approved. Therapy is only covered for a short period of time. Once all benefits are used then what? Ninjas Fighting Lymphedema Foundation is committed to improving the quality of life for patients with lymphatic diseases. Geographic areas served : Missouri https://www.faceboo

For those of you wondering how Susan has been getting on at the clinic, here below her updates from Lymphoedema Ireland Weeks 2 and 3 from the Foldi Clinic On  16/10/2017 By  Lymphoedema Ireland In  Blog ,  Your Stories Susan’s bandages and foam pieces Apologies for the delay in posting but I do have a good reason. On Saturday October 7th, on a day out in Freiburg with both legs bandaged, I fell and fractured my left elbow. It’s not bad, a hairline fracture, but I’m in a cast for 2 weeks and typing one handed isn’t easy. So now 3 limbs out of 4 are bandaged which has made the last 11 days challenging to say the least. The weather has been great, 26c today, but it’s not easy walking in that heat. I was sent from Foldi to the Helios Clinic in Neustadt for an X-ray on my elbow. I was in, x-rayed, and cast on in 50 minutes. Pretty impressive. Now back to my lymphoedema. I’m so happy with my treatment and every day my legs are a little smaller and less fibrotic. The lymph

As if Lymphoedema wasn't a big enough pain, 1 in 10 women can look forward to suffering from Lipoedema - a predisposition to laying down fat that starts in their teenage years. There are many sites that will talk you through this condition and I will post more on here soon. The reason for this post is to let you and other sufferers know that you are not alone. In this blog - from Germany so use auto translate, strong women are grouping together to work together to share how they get on with this condition and how they fight back. This site is for sufferers and run by sufferers! An English language version will be available soon You are not alone! https://www.deinestarkeseite.de/helle-kompressionsstruempfe-herbstlich-stylen/

https://www.youtube.com/watch?v=Dp0UWjoP_Oc Juzo were very proud to sponsor the entire first print run of this ground breaking book. Here is "the prof" at the original launch night talking about all things Lymph. His writing style makes everything very easy. Also Bill Repicci from LE&RN gives a really really empassioned speech about LE - from the patient perspective

A great blog about how chronic illness can change the way we see ourselves and others {lymphedema.}. Thank you  Alexa Ercolano https://thelymphielife.com/2017/10/05/looking-with-intention/ Have you ever thought about the way you look at people? What’s the intention behind your gaze – are you sizing them up as an “other,” or are you seeing them as a fellow being? Are you even seeing them at all? If I’m getting a little too abstract or “hippy-dippy” here, bear with me – I’ll explain! “Hard eyes” vs “soft eyes” A few years ago I took a psychology course in college called “Expressive Arts Therapies,” which focused on the various applications of art in therapy and healing. One lesson that always stuck with me was a mindfulness exercise about the way we look at others, specifically whether we use “hard” or “soft” eyes in our gaze. To look with “hard” eyes is to look with your mind already made up, so to speak. Your gaze is focused and direct, resolute. You’re seeing