Today I wanted to highlight one of the bigger not for profit oedema groups outside of the UK where we have the excellent LSN (Lymphoedema Support Network)
Hence...Ninja's Fighting Lymphoedema
https://greatnonprofits.org/reviews/ninjas-fighting-lymphedema-foundation/340252
Hence...Ninja's Fighting Lymphoedema
https://greatnonprofits.org/reviews/ninjas-fighting-lymphedema-foundation/340252
Mission: Ninjas Fighting Lymphedema Foundation is a non-profit organization with a strong patient to patient understanding. Our focus is to prevent disease, improve community health and promote LE awareness worldwide.
Target demographics: assist eligible patients with out of pocket expenses. Treatments consist of products, devices, therapy, and in some cases surgery. Most insured patients have to pay out of pocket portions if approved. Therapy is only covered for a short period of time. Once all benefits are used then what? Ninjas Fighting Lymphedema Foundation is committed to improving the quality of life for patients with lymphatic diseases.
Geographic areas served: Missouri
One of the great things about the web is that we have all these groups operating all over the world, and we can access all of them.
My job is to keep you posted if anything exciting comes up.
From time to time visit these guys, and any others you know about and just say hi - the amazing thing about this horrible condition is that it brings some of the nicest people in the world together.
Lets keep spreading the word that we need help, and we need fair treatment
We greatly appreciate your kind words and helping us spread awareness. Being a lymphedema patient myself; I understand the importance of being compliant and if you can't afford to be compliant then your LE will become harder to manage over time-even become debilitating.
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