If you have an oedema related condition in the UK the best first place of call - whether you have seen your doctor or not is the Lymphoedema Support Network. http://www.lymphoedema.org/
I recently attended a meeting given by Professor Peter Mortimer, the first guy in lymphatics, and still the best. Even he said that in this realm of medicine everyday he meets sufferers who know more about the condition than he does. He doesn't feel threatened ofcourse, he puts it in his databank and stores it for use in the future.
The point is that as a sufferer , YOU, must become the expert, not on a genetic level, but YOU must understand your condition and what's available from where. Sure some of it is available on prescription, but from time to time we all have to invest in our health and dig into our pockets.
How many times I meet sufferers who have no idea which companies garment they are wearing, what the class is, how long they have had it. This is your condition and unfortunatley YOU have to guide the GP - which is actually great because you can be in a position to influence your GP because you know more than they do.
So, get in touch with the LSN, get knowledgeable, and get the treatment you deserve to get this wretched condition under control
I recently attended a meeting given by Professor Peter Mortimer, the first guy in lymphatics, and still the best. Even he said that in this realm of medicine everyday he meets sufferers who know more about the condition than he does. He doesn't feel threatened ofcourse, he puts it in his databank and stores it for use in the future.
The point is that as a sufferer , YOU, must become the expert, not on a genetic level, but YOU must understand your condition and what's available from where. Sure some of it is available on prescription, but from time to time we all have to invest in our health and dig into our pockets.
How many times I meet sufferers who have no idea which companies garment they are wearing, what the class is, how long they have had it. This is your condition and unfortunatley YOU have to guide the GP - which is actually great because you can be in a position to influence your GP because you know more than they do.
So, get in touch with the LSN, get knowledgeable, and get the treatment you deserve to get this wretched condition under control
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