Skip to main content

Got Oedema in The UK - you need to visit this site

If you have an oedema related condition in the UK the best first place of call - whether you have seen your doctor or not is the Lymphoedema Support Network. http://www.lymphoedema.org/

I recently attended a meeting given by Professor Peter Mortimer, the first guy in lymphatics, and still the best. Even he said that in this realm of medicine everyday he meets sufferers who know more about the condition than he does. He doesn't feel threatened ofcourse, he puts it in his databank and stores it for use in the future.

The point is that as a sufferer , YOU, must become the expert, not on a genetic level, but YOU must understand your condition and what's available from where. Sure some of it is available on prescription, but from time to time we all have to invest in our health and dig into our pockets.

How many times I meet sufferers who have no idea which companies garment they are wearing, what the class is, how long they have had it. This is your condition and unfortunatley YOU have to guide the GP - which is actually great because you can be in a position to influence your GP because you know more than they do.

So, get in touch with the LSN, get knowledgeable, and get the treatment you deserve to get this wretched condition under control

Comments

Seiden care for oedema sufferers - click the logo

Popular posts from this blog

Ninja's fighting Lymphoedema

Today I wanted to highlight one of the bigger not for profit oedema groups outside of the UK where we have the excellent LSN (Lymphoedema Support Network) Hence...Ninja's Fighting Lymphoedema https://greatnonprofits.org/reviews/ninjas-fighting-lymphedema-foundation/340252 Mission : Ninjas Fighting Lymphedema Foundation is a non-profit organization with a strong patient to patient understanding. Our focus is to prevent disease, improve community health and promote LE awareness worldwide. Target demographics : assist eligible patients with out of pocket expenses. Treatments consist of products, devices, therapy, and in some cases surgery. Most insured patients have to pay out of pocket portions if approved. Therapy is only covered for a short period of time. Once all benefits are used then what? Ninjas Fighting Lymphedema Foundation is committed to improving the quality of life for patients with lymphatic diseases. Geographic areas served : Missouri https://www.faceboo

Could a Topical Cream Prevent Lymphedema? Study in Mice Suggests Yes

This would be fantastic news - it seems a little way off but there is always hope Summary Mounting evidence implicates inflammation as a cause of lymphedema, a common side effect of cancer treatment. Topical drugs that suppress this inflammation may hold promise as a therapy. Highlights Previous research has shown that immune cells promote the inflammation that leads to lymphedema. Drugs that block the action of these cells may be one way to combat the condition. In mice, an FDA-approved anti-inflammatory drug applied to the skin prevented lymphedema from developing and treated it once it occurred. One of the most dreaded complications of cancer treatment is lymphedema — the uncomfortable and often disfiguring accumulation of fluid in the arms or legs. The condition is progressive and there are no known cures. Lymphedema most commonly occurs following the removal of lymph nodes, a procedure that can injure the delicate vessels of the lymphatic system, which helps

Lipoedema - a frequently misdiagnosed and misunderstood fatty deposition syndrome

In this online presentation Margarita Correa MD takes us through the background of Lipoedema, the co-morbidities, the lab background etc https://www.slideshare.net/physmedi/lipedema-fatty-tissue-deposition-syndrome?trk=v-feed For me this is great knowledge to try to understand exactly what lipoedema sufferers have going on. Virtually everything you need to know is in this presentation! Happy reading.(learning in my case)