oedema information

How often do people ask us to describe what is Lymphoedema.. It's quite tricky if you ask me, and particularly tricky to visualize. In this video the Compton Hospice have given us a nice, simple graphical representation of how to explain whats going on Click Picture to Watch Video https://www.youtube.com/watch?v=q5h8IJnROP8&t=11s Hopefully this is easy for everyone, whatever age to understand. In the next few days I'll put the degree level graphic up to keep you all on your toes Have a good one

Hi Everyone. Todays piece is about the Lymphoedema Support Network in the UK. For those outside of the UK please do make sure that you visit their website because it is literally choc full of amazing free resources! http://www.lymphoedema.org/ I have known Anita, Karem and the team for over 10 years now and they are amongst the most knowledgeable and caring team out there. Whether you are a new sufferer. or a long term sufferer they will be able to help and will always do so with a smile on the face (you can tell - even down the phone) So please have a look around the site, learn about your condition and share the LSN information The LSN even have a course for Doctors! Here a piece from their website detailing just that.... Continuing our work with General Practitioners Being a General Practitioner (GP) in today’s NHS is not an easy task, appointment times are short, demand is high, extraordinary growth in medical knowledge, along with what we expect our GPs to know

Living in England in the 80s as a teenager if anyone ever talked about the "p" word it either meant going to the toliet or reminded me of the TV show Blockbusters when everyone would laugh when a contestant would say "can I have a P please Bob" Now I'm older and mostly more grown up I have a better understanding of what the "p" word means to people. When you don't have pain, you don't understand. How many times have we looked at someone struggling with a bad back and shook our heads in disbelief. We'll, with Oedema, and lipoedema that happens all the time. All that is seen is a "Fat" shell, so obviously this has been brought about by the person themselves, and being overweight doesn't hurt - does it. Well, let me tell you Oedema really hurts. In the post below from Lymphie Strong, Vern  captures it beautifully as she shares part of her story Enjoy, and think. Pain and Lymphedema Let’s talk about the “P” word. T

Hi Everyone Many of you are following Susan's journey at the Foeldi clinic. She's finally finished. This quick update tell us how she faired, and what she has to do now when she goes back to Ireland Not all health systems are created equally, and sometimes even though we have an imperfect system, at least we have something. However, it is only by being united in our struggles across the world that we can continue to keep raising the profile of this very common condition www.lymphireland.com/6431-2/ 

In this online presentation Margarita Correa MD takes us through the background of Lipoedema, the co-morbidities, the lab background etc https://www.slideshare.net/physmedi/lipedema-fatty-tissue-deposition-syndrome?trk=v-feed For me this is great knowledge to try to understand exactly what lipoedema sufferers have going on. Virtually everything you need to know is in this presentation! Happy reading.(learning in my case)

Today I wanted to highlight one of the bigger not for profit oedema groups outside of the UK where we have the excellent LSN (Lymphoedema Support Network) Hence...Ninja's Fighting Lymphoedema https://greatnonprofits.org/reviews/ninjas-fighting-lymphedema-foundation/340252 Mission : Ninjas Fighting Lymphedema Foundation is a non-profit organization with a strong patient to patient understanding. Our focus is to prevent disease, improve community health and promote LE awareness worldwide. Target demographics : assist eligible patients with out of pocket expenses. Treatments consist of products, devices, therapy, and in some cases surgery. Most insured patients have to pay out of pocket portions if approved. Therapy is only covered for a short period of time. Once all benefits are used then what? Ninjas Fighting Lymphedema Foundation is committed to improving the quality of life for patients with lymphatic diseases. Geographic areas served : Missouri https://www.faceboo