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Showing posts from September, 2017

Rare Footage of the Guru - Peter Mortimer - Lets Talk Lymphoedema

We are are honored to sponsor the book, Let’s Talk Lymphoedema: The Essential Guide to Everything You Need to Know. This book features chapters by actress Kathy Bates, LE&RN president and CEO Bill Repicci and photography from co-author and photo-journalist Gemma Levine. We are thrilled to have a hand in offering a free copy to new LE&RN members. Learn more about the book in this interview with Bill and co-author Peter Mortimer: https://www.youtube.com/watch?v=c1Kgpxs16dY Download your free .pdf of this book at https://sieden.co.uk/products/peter-mortimer-lymphoedema-book

Lymphoedema and a Man

Elevating the voices of men with lymphedema: Finding trousers (and treatment) that fit Talking to Josh, Michael, Angus, and Steve about the trial-and-error that comes along with living with lymphedema. BY  ALEXA ERCOLANO SEPTEMBER 14, 2017 “As a long time lymphedema victim, I have never met any other victims, nor have I heard from any other men in forums,” wrote Alan  in a Facebook comment . “I find it quite depressing. I often wonder –  am I the only guy with this bloody disease?” A comment popped up in reply: “You’re not.  ” That little nod of solidarity came from Josh, a young man living in England. Josh has had lymphedema in his left leg for six years, although he wasn’t diagnosed until about three years ago. In that time he’s had one bout of cellulitis, which was so serious that he was hospitalized: “It very nearly killed me.” The cellulitis forced Josh to come to terms with his lymphedema, although his peers still struggle to understand. “I hav

LE&RN

The LE&RN network is amazing If you are a sufferer or know a sufferer these guys have so much useful stuff In this video you can see Bill who heads it up and a really famous LE sufferer being honoured ! https://www.youtube.com/watch?v=wWKyXJOuUs4 When I first met Bill I though the organisation was L and E and RN - but hey I'm not that clever. Lymphoedema in the USA in commonly known as LE, and the LE&RN network is all about learning. Seems obvious now

Do's and Don'ts

One of the best blogs on the internet is Stay Lymphie Strong. Here Veronica tells us the do's and don'ts ! Stay Lymphie Strong: Do’s and Don’ts The biggest questions I now receive is “How do you maintain reduction?  What are your Do’s and Don’ts?” When you become a patient of a Certified Lymphedema Therapist (CLT), one of the first things they hand you,  or should (EMPHASIS ON SHOULD)  is a few handouts of the Do’s and Don’ts for lifelong Lymphedema Management.  In my case, it was for the lower extremity. For me, maintaining the reduction of Lymphedema swelling is comprised of adherence to these basic principles combined with a little common sense and listening to your own unique body.  In other words, it’s a mixed approach and it’s very personal and individualized.  I see you rolling your eyes. Just bear with me. What works for one person may not work for another, due to innumerous factors.  Anything from LE severity, stage, age, weight, or other general heal

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