oedema information

A very frank article about what can happen after surgery The cancer survivor who still has to pay the price Surviving cancer but living with lymphoedema At the first-ever lymphoedema awareness campaign was the chairwoman of Lymphoedema Ireland, Nina Murray. Photograph: Jason Clarke   Share to Facebook Share to Twitter Share to Email AppShare to Pinterest   In the past decade Nina Murray’s life has changed beyond recognition. In 2008, she was diagnosed with cervical cancer and while fortunately it was caught early, she underwent a gruelling treatment programme, life-altering surgery and although she survived her ordeal, has been left with lymphoedema – a condition which causes the limbs to swell way beyond normal proportions. When she met her husband Tony at the end of 2003, the civil servant had no idea how much would happen to her in just a few short years. “Tony and I met in Dublin on New Years’ Eve and have been together ever since,” she says. “

This is a great video. Prof Mortimer in a frank interview with LE&RN talking about the genetics involved with Lymphoedema. It's really important that the medics and scientist get their heads around this so that we can get more and more information to improve the outcomes , and even maybe get a cure for the sufferers of this around the world

Very Happy to Support the biggest by patients, for patients Lymphoedema group in the UK

The LSN is a great resource for Lymphoedema sufferers from any part of the globe. Here is an article from their great magazine. - Please visit them and sign up This article is taken from the Summer 2017 issue of LymphLine, the LSN's quarterly newsletter available to all LSN members. For details of how to become a member,  click here . Antibiotics for surgical procedures in patients with lymphoedema - summary of BLS / LSN guidelines By Professor Dominic Furniss, Department of Plastic and Reconstructive Surgery, Oxford University Hospitals NHS Trust Why do patients with lymphoedema get infections? We know that patients with lymphoedema are predisposed to getting infections of the affected area. This is most commonly “cellulitis”, a spreading infection of the skin and subcutaneous fat. It usually causes redness, swelling and heat, and often makes the area tender to touch. It can also cause systemic upset, with fevers, sweating, shivers, muscular aches and pains, headache,

PROPER FITTING OF AND CARE FOR SLEEVES AND GLOVES /GAUNTLETS Brand new to compression garments? How hard can this be? After all, we've spent our lives trying on all sorts of garments, even unfamiliar ones. It's always an occasion. The first flowery dress-up hat and little white gloves. That longed-for (or dreaded) training bra. A wobbly maiden voyage to the theater in a new pair of high heels. Braving the mysteries of  Victoria's Secret  for a silky black negligee. You may never have owned anything like it before, but you know it fits because it feels right, and it looks right too. But immediately you know this time is different. All those other milestones were predictable, rites of passage that you knew were coming. Everybody else did too. Lymphedema is different. You didn't expect it, and the chances are nobody you know did either. But here you are, needing compression garments, wondering what this new experience will hold. A few words of warning and encourage

Nice simple post today. This article from the daily mail (no comments either way please) is quite good and shows some of the issues affecting sufferers of this condition http://www.lipoedema.co.uk/wp-content/uploads/2016/10/Lipoedema-Daily-Mail-PDF.pdf

This appeared on my facebook feed today, and could be of use!